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Information and Advice Provision for Parents and Carers of Nasogastric and Gastrostomy Fed Children

Link opens in new windowKey Findings Report August 2007 (PDF, 384K, 56secs)

About this Report

This key findings report presents the conclusions obtained from the research. It should be noted that this key findings report details parents’ own perceptions of advice and information they have received from a variety of health-related sources.

It is not a comprehensive report on the actual advice and information that may be available in each health board area included in the research.

About the research

Practice Development have commissioned a small research study to:
  • establish the information and advice required by parents and carers of children with nasogastric or gastrostomy tube feeding
  • and identify gaps that there may be in the provision of such information.

A number of factors pertinent to the delivery of such advice and care were taken into consideration. Factors such as:

  • The availability and consistency of information across different geographical settings, particularly in relation to parents' and carers' proximity to specialist healthcare units and the information requirements needed
    • This included any issues relating to rural vs. urban settings 
    • The parents' and carers' personal position regarding their child’s requirements - e.g. children requiring such feeding tools for short-term following birth vs. those who require them for a longer time period
    • The potentially sensitive subject matter

Best Practice Statement Review

This research is part of the review and development of Best Practice Statements:

September 2007: Caring for children and young people in the community receiving enteral tube feeding

2003: Nasogastric and gastrostomy tube feeding